Shaping the Future of Ageing with HIV in Europe

The European Community-Driven Observatory

PRISMA brings together people living with HIV, researchers, clinicians, and advocates to create a world where ageing with HIV is understood, supported, and equitable.

Shaping the future
PRISMA Spectrum of Human Perspectives

Like a prism that reveals the full spectrum of light

Ageing with HIV involves medical, psychological, and social dimensions that cannot be understood in isolation. PRISMA functions like a prism, bringing together diverse perspectives to reveal the complete picture.

By connecting lived experience with scientific rigor and clinical practice, we illuminate overlooked challenges and design comprehensive solutions for long-term health and wellbeing across Europe.

Guiding Principle

Nothing About Us Without Us.

Lived experience is a core form of expertise. PRISMA ensures that people ageing with HIV are active leaders and co-creators at every stage of research, governance, and policy-making.

A community for everyone

PRISMA unites individuals and organisations across Europe who are committed to transforming how society understands and supports ageing with HIV.

By getting involved, you can:

Connect with a growing European and international community
Contribute to community-driven and co-produced research
Shape policy, practice, and advocacy priorities

Ready to Join PRISMA?

Whether you are a person living with HIV, a researcher, or representing an organisation, your voice matters. Join the PRISMA Observatory today to collaborate across countries, sectors, and disciplines.

Curious? Stay in touch!

Not ready to become a member yet? Leave your email address below to receive our latest news, research updates, and event invitations.

From longer lives to equitable and transformative ageing

Our Mission & Strategic Vision

PRISMA is the European Community-Driven Observatory on Ageing with HIV. We bring together lived experience, research and clinical expertise to build the know-how Europe needs—and translate it into better research, care, policy and action.

Our Vision

A Europe where everyone living with HIV can age with health, dignity, autonomy, equity and the opportunity to participate fully in society.

Equitable Ageing

Ensuring that everyone benefits from longer life, scientific progress and quality care across all populations.

Transformative Ageing

Changing research, healthcare, policy and society to meet the realities of living and growing older with HIV.

The Life Course Reality

Addressing the needs of both those born with HIV and those who have lived with it for decades.

Why PRISMA Exists

Europe does not lack knowledge about HIV and ageing. It lacks a sustained European mechanism for connecting, analysing and acting on that knowledge.

Evidence, clinical expertise, policy intelligence and lived experience remain fragmented across disciplines, populations and countries. PRISMA connects what Europe knows to bridge these gaps.

Tripartite Approach

A Different Model of Expertise

PRISMA breaks down silos by integrating three equally crucial pillars into a single unified framework. No single form of knowledge is sufficient. Together, they reveal overlooked questions, strengthen evidence and enable more effective responses.

1 Lived Experience
2 Research & Academia
3 Clinical Practice
Core Governance

Community-Driven Leadership

People ageing with HIV do not just advise PRISMA—they co-lead its mission, ensuring lived experience shapes every level of our work.

  • — Active co-design of research questions and evidence interpretation
  • — Direct influence on strategic governance and institutional policy

The PRISMA Observatory

Our core European knowledge infrastructure systematically transforms data and experience into impactful actions.

Detect
Spot emerging issues and inequalities across Europe.
Connect
Bring together lived, scientific, and clinical expertise, connecting knowledge and data across Europe.
Compare
Analyze cross-border trends and disparities.
Interpret
Co-produce meaning through lived expertise.
Act
Translate insights into policy and real-world change.

This continuous process enables PRISMA to identify emerging challenges, expose inequalities, address evidence gaps and support better research, care and policy.

How the observatory works

Community Intelligence

Listening to people ageing with HIV and community organisations to identify emerging experiences and inequalities.

Science & Research

Connecting researchers across disciplines to examine knowledge, identify gaps and develop new research priorities.

Clinical & Service

Working with clinicians and service providers to identify changing needs and differences in practice.

European Mapping

Building a comparative picture of ageing with HIV across European populations, policies and services.

Public Engagement

Creating accessible opportunities for communities and professionals to exchange knowledge and shape questions.

Policy Translation

Monitoring policy developments and translating evidence into practical resources for decision-makers.

Our Core Values

Community Leadership

People ageing with HIV hold meaningful power in shaping our priorities and actions.

Equity & Inclusion

Ensuring everyone benefits equally from longer life, progress, and care.

Co-production

Lived experience, research, and clinical expertise are integrated from the start.

Scientific Integrity

Rigorous, transparent, independent work willing to challenge assumptions.

Intersectionality

Examining how gender, ethnicity, class and experiences of poverty, among other factors, shape ageing.

Gender Transformation

Challenging the gendered norms, power relations, and inequalities that shape ageing with HIV, while ensuring women and gender-diverse people help define the evidence, policies, and solutions.

Our 2030 Ambition

By 2030, PRISMA aims to be a sustainable and independent European reference point for ageing with HIV, ensuring that lived experience and evidence shape public policy, health-system planning and investment across Europe.

  • A fully functioning European Observatory informing public policy
  • A stronger shared and comparative evidence base for policy and planning
  • Meaningful community power in research and policymaking
  • Sustained collaboration among communities, researchers, clinicians and policymakers

From longer lives to equitable and transformative ageing.

Become a Member

Select the option that best describes how you wish to join PRISMA.

Individual membership

For people who wish to join PRISMA in an individual capacity.

Organisational membership

For organisations and institutions that wish to become members of PRISMA.

Individual Membership – Join PRISMA

For people living with, ageing with, or affected by HIV, as well as researchers, clinicians, public health professionals, advocates, and allies committed to equitable and transformative ageing with HIV.

Individual Membership Registration

Your Relationship to HIV and Ageing

Select all that apply.

Areas of Interest

Select up to five.

Tell Us More

We welcome additional information about your experience, expertise, interests, priorities, or motivation for joining PRISMA.

Membership Commitments

By becoming a member of PRISMA, you agree to:

  • Support the principle of community leadership and co-production
  • Respect PRISMA’s mission, values, and objectives
  • Contribute to an inclusive, respectful, and collaborative community
  • Consent to PRISMA processing your information in accordance with its Privacy Policy

You may also choose to:

Organisational Membership – Join PRISMA

For organisations, institutions, networks, partnerships, and professional bodies working across HIV, ageing, health, social care, research, policy, disability, gender equality, and human rights.

Organisational Membership Registration

Organisational Focus

Select all that apply.

Areas of Collaboration and Interest

Select all that apply.

Tell Us More

We welcome additional information about your organisation’s experience, expertise, interests, priorities, or motivation for joining PRISMA.

Membership Commitments

By becoming a member of PRISMA, you agree to:

  • Support the principle of community leadership and co-production
  • Respect PRISMA’s mission, values, and objectives
  • Contribute to an inclusive, respectful, and collaborative community
  • Consent to PRISMA processing your information in accordance with its Privacy Policy

You may also choose to: